I’ve had Cerebral Palsy since birth (over 40 years ago!) and over the years, it’s surprised me how many people aren’t aware of the condition. I often encounter many myths about the condition and as March is Cerebral Palsy Awareness Month (CP), it’s an ideal opportunity to address the truths about the condition.

But firstly, what is CP? In simple terms, Cerebral Palsy is a neurological condition which impacts the part of the brain which controls movement and co-ordination. The brain becomes damaged, typically just before or after birth, which makes it difficult to control the muscles. The severity of the condition can vary and everyone who has Cerebral Palsy will experience it differently.

So now, let’s debunk some of those myths!

Cerebral Palsy is a disease

The condition is not a disease. As explained above, CP is a neurological condition caused by damage to the brain.  It’s not contagious and it’s not progressive.  Cerebral Palsy isn’t caused by anything the mother does or doesn’t do during her pregnancy and it’s not a hereditary. It’s typically caused by a medical accident just before or after birth, or sometimes as a result of an accident in early childhood.

Everyone who has Cerebral Palsy uses a wheelchair

Whilst some people, including myself, will use a wheelchair to assist their mobility, not everyone with CP will use a wheelchair. It’s estimated that up to 50% of those with the condition use a wheelchair or other device to assist mobility.

Though I use my wheelchair outdoors and for long distances, I can walk about within my house and where I have things to hold on to.

People who have CP have low intelligence

This is one I’ve fought against all my life! Cerebral Palsy impacts muscle control and co-ordination – not intelligence! So many people make the assumption that because I’m disabled, I can’t understand what’s been said to me or speak for myself! Many people with CP have average or above-average intelligence so please don’t assume otherwise.

Those with Cerebral Palsy can’t live independently

If I had a pound for everyone who asked if I have a carer, I’d be booking a round the world cruise! OK, well not quite but you get the gist!  Sure, there’s some things I need assistance with that makes life easier but for the most part, I’m really independent and get out and about by myself.  Some people with CP may have carers, some may utilise adaptions and technology to enable them to live independently. Again, try not to make assumptions about the level of assistance that an individual needs.

Cerebral Palsy is life-limiting

Nope! As already mentioned, CP is not progressive and people with the condition have a normal life expectancy.  The symptoms of Cerebral Palsy may become more apparent as the individual ages but the damage to the brain won’t change.

Cerebral Palsy limits the individual in terms of education and employment

I think by now you’re probably in the picture! Whilst having Cerebral Palsy can present physical challenges, it doesn’t have to limit opportunities for education and employment. Many individuals with CP thrive in a mainstream educational setting with the right support in place. My Cerebral Palsy Story explains my own journey through education. Though there were considerable challenges, SEND provision has developed so much since I was young. Hooray!

Securing my first job wasn’t easy due to the general attitudes of employers but I did it and worked full-time very successfully. I now run my own disability training business and work for Birmingham City University as an Expert by Experience. In both roles, I’m using my skills and experience as a disabled person to educate others and I wouldn’t want to do anything else.

Those with Cerebral Palsy can’t have a family of their own

You know what I’m going to say, right?! Yes, despite having Cerebral Palsy, I’m mum to two gorgeous boys and was able to have relatively normal pregnancies and births. My condition hasn’t stopped me from having a loving relationship and raising a family. I’m not going to fib – it has sometimes added extra physical challenges but my midwife and consultant were fully supportive and there was no reason that CP should stop me from having children.

Debunking these misconceptions helps to raise awareness of CP and break down barriers for those with the condition. To learn more, check out my CP Awareness Workshop.