Managing psoriasis with cerebral palsy
Trying to manage psoriasis whilst also living with cerebral palsy.
I have Cerebral Palsy but it doesn't have me!
Trying to manage psoriasis whilst also living with cerebral palsy.
There are extra challenges attached to being a disabled parent and there is very little specialist information and support out there for those in my position. I hope by sharing my stories, other disabled parents might not feel alone.
This year I’ve decided to offer four schools a free Disability Awareness Assembly during March
Thirteen years ago, I was working full-time for a small charity in Reading and relying on an electric wheelchair provided by the NHS Wheelchair Services. I remember the day I got the chair – it was one they just had in the department and wasn’t customised to me even though I regularly suffered with backContinue reading Wheelchair Services are still failing disabled people
Happy 2023! I always find this time a year a little depressing – the excitement of Christmas is gone, the winter lies ahead and yet, we’re supposed to be refreshed and excited about the year ahead. It’s a tough time for getting motivated but nonetheless, I’m determined to try. Last year was the best yetContinue reading 2023 – I’m coming for ya!
As part of my #QuestionMarkWhereYouPark Campaign, I recently wrote to my MP, Nicola Richards, to ask her to support the campaign and consider raising it in Parliament. Though it took her a little while to respond, Nicola seemed sympathetic and supportive of the issues I had raised. Nicola made me aware of the Traffic RegulationContinue reading #QuestionMarkWhereYouPark Update
I know I’ve written about this before but Christmas is a particularly difficult time to be a wheelchair user. From mid-November, I begin to notice the aisles in shops starting to narrow as retailers seek to cram as much as they can in to attract festive shoppers. It becomes almost impossible to get around withoutContinue reading Christmas shouldn’t compromise disability access
Recently, I was absolutely delighted to be asked by Just Ideas to support a Climate Change Conference specifically for secondary school pupils in Solihull. The conference aimed to replicate COP27, with each school representing a country of the United Nations and the pupils taking on the role of government negotiators. It was amazing to seeContinue reading Supporting Solihull Schools to recreate COP27
When I was pregnant with our first little lad, Jack, my hubby decided he was going to start a social experiment to track the cost of raising a child. He didn’t believe the reports that it typically costs £250k to raise a child to the age of 18 and was going to prove it! FocusingContinue reading Hubby’s Costs to Expect: how it all started…
When my eldest was a baby, I only took him out alone if I was going to visit my parents or close friends, who could offer support if I needed it. I took Jack to a local playgroup but only if my friend was going too. Although there’s very little I’ve been unable to doContinue reading Diary of a Disabled Mum: Experience builds Confidence (slowly)